May 5 1 note Reblog post

Baby Boy names!

Emerson OR Talon?

tannerbria: Noah: Would you just stay with me?  Allie: Stay with you? What for? Look at us, we’re already fightin’ Noah: Well that’s what we do, we fight… You tell me when I am being an arrogant son of a bitch and I tell you when you are a pain in the ass. Which you are, 99% of the time. I’m not afraid to hurt your feelings. You have like a 2 second rebound rate, then you’re back doing the next pain-in-the-ass thing. Allie: So what? Noah: So it’s not gonna be easy. It’s gonna be really hard. We’re gonna have to work at this every day, but I want to do that because I want you. I want all of you, for ever, you and me, every day. Will you do something for me, please? Just picture your life for me? 30 years from now, 40 years from now? What’s it look like? If it’s with him, go. Go! I lost you once, I think I can do it again. If I thought that’s what you really wanted. But don’t you take the easy way out. Allie: What easy way? There is no easy way, no matter what I do, somebody gets hurt. Noah: Would you stop thinking about what everyone wants? Stop thinking about what I want, what he wants, what your parents want. What do YOU want? What do you WANT? Allie: It’s not that simple. Noah: What… do… you… want? Whaddaya want?  Allie: I have to go now.

The worlds Largest online Medical Dictionary doesn’t even have my babies heart condition because it is that rare. There NEEDS to be more awareness about this!


*Heterotaxy Syndrome*

wishesinthemoonlight: There’s always, ALWAYS hope.
May 5 0 notes Reblog post

A small bit of relief

Today we got our test results back from my maternal serum testing. (needle in my stomach to test amniotic fluid) The first half of the test was to test a few chromosomes that if there are any missing can mean down syndrome, etc. BUT there was nothing wrong and everything has been ruled out!

So now, my baby boy just has a heart condition. It is still extremely hard to handle and go through, but even the smallest good news gives me more hope.

I am 21 weeks today. On Monday, May 14th I had to go to the IWK Children’s hospital for a ultrasound and a closer look because my doctor noticed that something “might” be wrong with my babies heart. While I was there I found out I was having a beautiful baby boy!After all my ultrasounds, maternal serum testing (needle in the stomach) and blood work, I found out that my Beautiful baby boy has “Heterotaxy Syndrome-Right Isomerism.” Its the most rare and complex congenital heart disease you can have. The heart is completely backwards and all the Atrium’s and Arteries are backwards, causing the red and blue blood to be together instead of separate. It has 2 chambers and a normal heart has 4. His body cavity has only a right side and no left side. That means the stomach and liver are mid-line (down the middle not on one side or the other) he has no spleen (to fight infection), and only the right half of a heart. He has a little chance of living. The only thing keeping Him alive is my placenta. Once born he needs 3 surgeries, up until 3 years old, if he lives through the birth. We would have to stay in the hospital for months. On top of that I had to get the needle in my stomach for serum testing and in 3 days will find out if it also has down syndrome, because his arms and legs showed to be short on the ultrasound. My 2 and ONLY options are abort the pregnancy, where since I am so far along I would be given medication through my vagina to make me go into labor and have to give birth to my dead baby boy. OR I can follow through with the pregnancy and hope he survives when born to be able to have surgery. Even after all 3 surgeries, he has a 20-25 % chance of survival, and will have a shorter life expectancy.I have been doing nothing but crying and sleeping for days now. While everyone is telling me their opinions I can’t help but go with what is in my heart! I never believed in abortion from the beginning why would I believe in it now? I would rather take that 20-25% chance for having even a few hours, months or years with my baby boy, then abort the pregnancy and ALWAYS wonder if he would have been strong enough to make it through. I may not have been through all the things that makes you a mom, but I AM a mother now. I would give ANYTHING for my baby to live healthy and me be the one who has that 20-25% chance after labor.He is my life now. I feel him kicking and punching everyday and night. I haven’t even decided on his name let alone heard him cry, but I know there is nothing on this earth that is more important to me!More info:http://www.chop.edu/service/cardiac-center/heart-conditions/heterotaxy-syndrome.html A blog about a woman with a child like mine:http://heterotaxysyndrome.com/about-logan/

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